|Publication Type||Journal Article|
|Year of Publication||1999|
|Authors||Singer PA, Martin DK, Kelner M|
|Date Published||1999 Jan 13|
|Keywords||Adult, Advance Care Planning, Aged, Aged, 80 and over, Communication, Decision Making, Female, HIV Infections, Humans, Kidney Failure, Chronic, Long-Term Care, Male, Middle Aged, Pain Management, Patient Advocacy, Patient Satisfaction, Qualitative Research, Quality of Life, Renal Dialysis, Research, Stress, Psychological, Terminal Care, Terminally Ill, Withholding Treatment|
CONTEXT: Quality end-of-life care is increasingly recognized as an ethical obligation of health care providers, both clinicians and organizations. However, this concept has not been examined from the perspective of patients.
OBJECTIVE: To identify and describe elements of quality end-of-life care from the patient's perspective.
DESIGN: Qualitative study using in-depth, open-ended, face-to-face interviews and content analysis.
SETTING: Toronto, Ontario.
PARTICIPANTS: A total of 126 participants from 3 patient groups: dialysis patients (n = 48), people with human immunodeficiency virus infection (n = 40), and residents of a long-term care facility (n = 38).
OUTCOME MEASURES: Participants' views on end-of-life issues.
RESULTS: Participants identified 5 domains of quality end-of-life care: receiving adequate pain and symptom management, avoiding inappropriate prolongation of dying, achieving a sense of control, relieving burden, and strengthening relationships with loved ones.
CONCLUSION: These domains, which characterize patients' perspectives on end-of-life care, can serve as focal points for improving the quality of end-of-life care.