| Title | |
| Publication Type | Journal Article |
| Year of Publication | 1999 |
| Authors | Singer PA, Martin DK, Kelner M |
| Journal | JAMA |
| Volume | 281 |
| Issue | 2 |
| Pagination | 163-8 |
| Date Published | 1999 Jan 13 |
| ISSN | 0098-7484 |
| Keywords | Adult, Advance Care Planning, Aged, Aged, 80 and over, Communication, Decision Making, Female, HIV Infections, Humans, Kidney Failure, Chronic, Long-Term Care, Male, Middle Aged, Pain Management, Patient Advocacy, Patient Satisfaction, Qualitative Research, Quality of Life, Renal Dialysis, Research, Stress, Psychological, Terminal Care, Terminally Ill, Withholding Treatment |
| Abstract | CONTEXT: Quality end-of-life care is increasingly recognized as an ethical obligation of health care providers, both clinicians and organizations. However, this concept has not been examined from the perspective of patients. OBJECTIVE: To identify and describe elements of quality end-of-life care from the patient's perspective. DESIGN: Qualitative study using in-depth, open-ended, face-to-face interviews and content analysis. SETTING: Toronto, Ontario. PARTICIPANTS: A total of 126 participants from 3 patient groups: dialysis patients (n = 48), people with human immunodeficiency virus infection (n = 40), and residents of a long-term care facility (n = 38). OUTCOME MEASURES: Participants' views on end-of-life issues. RESULTS: Participants identified 5 domains of quality end-of-life care: receiving adequate pain and symptom management, avoiding inappropriate prolongation of dying, achieving a sense of control, relieving burden, and strengthening relationships with loved ones. CONCLUSION: These domains, which characterize patients' perspectives on end-of-life care, can serve as focal points for improving the quality of end-of-life care. |
| Alternate Journal | JAMA |
| PubMed ID | 9917120 |
Quality end-of-life care: patients' perspectives.
Submitted by editor on February 26, 2015 - 1:33pm